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Outcome Measures and Metrics in Systemic Lupus Erythematosus [electronic resource]
Touma, Zahi
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| 자료유형 | 단행본 |
|---|---|
| 개인저자 | Touma, Zahi.,editor. |
| 단체저자명 | SpringerLink (Online service). |
| 서명/저자사항 | Outcome Measures and Metrics in Systemic Lupus Erythematosus [electronic resource] / edited by Zahi Touma. |
| 판사항 | 1st ed. 2021. |
| 형태사항 | XIV, 418 p. 28 illus., 23 illus. in color:online resource. |
| 기본자료 저록 | Springer Nature eBook |
| 기타형태 저록 | Printed edition:9783030733025Printed edition:9783030733049 |
| ISBN | 9783030733032 |
| 기타표준부호 | 10.1007/978-3-030-73303-2 |
| 내용주기 | 1. Introduction: Metrics and Psychometric Properties -- 2. Domains Measured in Systemic Lupus -- 3. Measuring Disease Activity -- 4. Measuring Damage -- 5. Measurements in Lupus Clinical Trials -- 6. Application of Measurements in Clinical Practice -- 7. Patient-reported Outcomes in Lupus -- 8. Health-related Quality of Life in Lupus -- 9. Assessment of Cognitive Function in Lupus -- 10. Assessment of Depression and Anxiety in Lupus -- 11. Assessment of Fatigue and Pain in Lupus -- 12. Emerging Concepts in Lupus: Sleep, Frailty, and Others -- 13. Activities and Participation for Patients with Lupus. |
| 요약 | Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others. |
| 일반주제명 | Rheumatology. Quality of life. Clinical health psychology. Rheumatology. Quality of Life Research. Health Psychology. |
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